Quite Mad is at once a well-organized history of mental illness, especially with regard to women, an examination of the role of the illness narrative, and a fascinating memoir of a woman’s struggle.
Read moreStoried Health and Illness: Communicating Personal, Cultural & Political Complexities by Jill Yamasaki, Patricia Geist-Martin, and Barbara Sharf
One powerful and widespread result of the narrative turn in academia has been to challenge what constitutes knowledge and to assert narrative as a particular type of valuable knowledge across a wide array of fields, including the study and practice of medicine. Narrative “knowledge provides a rich, resonant comprehension of a singular person’s situation as it unfolds in time, whether in such texts as novels, newspapers, stories, movies, and scripture or in such life settings as courtrooms, battle-fields, marriages, and illnesses” (Charon). Embracing narrative knowledge in the context of health communication, editors and authors Jill Yamasaki, Patricia Geist-Martin, and Barbara Sharf have contributed a unique text for students and healthcare professionals and practitioners entitled Storied Health and Illness: Communicating Personal, Cultural, and Political Complexities.
Innumerable textbooks, topical books, journal articles and the like have been written about the role of communication in health, from the medical interview to the mass-media driven public health campaign, which will whet the appetite of anyone interested in the broader field of health communication. However, Yamasaki, Geist-Martin and Sharf approach health communication through a narrative lens, and the subsequent outcome is a very different voice among the crowd of health communication texts crying out to be read.
Each chapter of Storied Health and Illness begins with a health narrative, such as the miscarriage story at the outset of the chapter on breaking bad news. The narrative functions as a way to illustrate the health communication concepts, theories, topics, and complexities covered in the chapter but also underscores narrative as a way of knowing for the reader. The book begins by introducing what a narrative approach to health communication means. More topical chapters follow, tackling narrative approaches to patient-provider interactions, healthcare teamwork, digitized healthcare, the role of art in healing, workplace health, stigmatized health experiences, breaking bad news, caregiving, supportive communities, social support, health campaigns, entertainment health education, politics of healthcare systems, health disparities, and activism. With broad strokes, the reader is introduced to narrative approaches to wide-ranging health communication topics and concerns that can, at the very least, inform and, at the very most, transform the practice of medicine and health communication.
Of particular interest are the chapter authors’ acuity at deconstructing the more traditional approaches that eschew narrative without destructively dismissing the value of alternative approaches. In most cases, the authors are attentive to the application of narrative knowledge within the appropriate health context to not only build knowledge but to affect practice. In particular, Dutta and Kaur’s chapter on the culture-centered approach and health disparities provides a constructive means to address health disparities using narratives that are “situated at these intersections of culture, structure, and agency”. Through communicative inversions — the intentional, strategic use of storytelling to voice and reflect what is often the oppositional experience of the storyteller to the collective understandings — stories take on a transformative power to address health disparities, possibly from a community participatory response. Similarly, Sharf demonstrates through diagrams how patient narratives intersect with four continuums: centrality of illness, changeability of outcome, engagement with illness, and patient-provider collaboration. Such practice-based knowledge is peppered throughout each chapter, making this text both generally informative for a reader who knows little of health communication and specifically helpful to a health practitioner or scholar wanting to diversify his or her narrative repertoire.
Scholar Lynn Harter reminds us that “narrating is a central feature of communication between care providers and patients, in relationships realized in health organizations, and in the mediated world of health-related information and entertainment.” Such a reminder reverberates in the approach, content, and lessons learned from Yamasaki, Geist-Martin, and Sharf’s text that take the reader into, through, and beyond the clinical encounter to interrogate how narrative and health intersect.—Elizabeth Spradley
References
Charon, Rita. “Narrative medicine: A model for empathy, reflection, profession, and trust.” Journal of American Medical Association. 286.15 (2001): 1897-1902.
Harter, Lynn. Imaging New Normals: A Narrative Framework for Health Communication. Dubouque, IA: Kendall Hunt, 2013.
Yamasaki, Jill et al. editors. Storied Health and Illness: Communicating Personal, Cultural, & Political Complexities. Long Grove, IL: Waveland Press, 2017.
Elizabeth Spradley is an assistant professor at Stephen F. Austin State University. Elizabeth completed her Ph.D. in health communication at Texas A&M University in fall 2013 and has embarked on an academic career aiming to blend interests in health communication, narrative, and interpersonal relationships. In addition to working on several research projects and teaching courses in interpersonal and health communication, she is passionate about growing her own food, encouraging others to garden, and speaking about her faith.
Draw Stronger: Self Care for Cartoonists & Visual Artists by Kriota Willberg
"Draw Stronger" is a new book that helps artists, writers and others methods for self-care.
Cartoonist, educator and Intima contributor Kriota Willberg creates graphic medicine artwork that deals with healthcare and illness in cleverly insightful ways. We look at her work that makes us laugh as we're thinking about the sensitive issues she brings so forcefully into view—like the ambiguity of a "Do Not Resuscitate" order ("Frankenstein," Intima, Fall 2017) or the thoughts of a therapist about her patient during a deep tissue massage ("Friction,"Intima, Fall 2015). As the first-ever artist-in-residence at the New York Academy of Medicine Library, Willberg brings her infinite knowledge of the human body with its attendant joys and woes into clear view in her art, offering an engagingly humane perspective on how it feels to be human.
Her useful and entertaining new book, "Draw Stronger: Self-Care for Cartoonists & Other Visual Artists," published by Uncivilized Books, takes her sense of mission into a more practical realm, one of explaining the many aches, injuries and strains our bodies suffer during our daily activities. Common complaints such as muscle spasms, tendon injury and nerve entrapment are explained in clear, humorous illustrations, so we understand exactly how these dreaded damages occur, and once we can see and understand their origins, Kriota Willberg gives us the ways to counteract them. She asks us to think about our pain and how we describe it, deny it or treat it—her book is a call for us to consider the benefits of self-care as well as a how-to manual for the ways to go about it.
There's no reason to live with pain, and it's important to cope and learn to handle it, posits this incredibly helpful book that includes exercises to promote that. Above, an illustration from "Draw Stronger: Self Care for Cartoonists & Visual Artists" by Kriota Willberg published by Uncivilized Books.
Although the book's title pointedly calls out to those hunched over a drawing table, I suspect that many of us can relate to the bodily pain described—and indeed, should read and follow her well-laid-out prescriptions for fixing and preventing the types of injuries also caused by repetitive activities such as computer work or posting videos of cute kitties on our smartphones.
Cartoonist and educator Kriota Willberg draws from decades of experience as a massage therapist and educator i health sciences and the arts, creating a comprehensive guide to injury prevention for cartoonists and anyone who hunches over a computer or smartphone on a daily basis, in "Draw Stronger: Self-Care for Cartoonists & Other Visual Artists" from Uncivilized Books press.
"Self-care is important!" she lightly admonishes us in her chapter entitled, "Think like a Cartoonist-Athlete" and as readers, we're probably giggling while we're following along with just how to do that as we read on to the next chapters, "Live like a Cartoonist-Athlete," and "Train like a Cartoonist-Athlete" where she demonstrates the many ways "to modify our daily activities to reduce the change of injury 24/7."
Everyone who owns a computer or strains his or her neck looking at a smartphone can benefit from this book. Shown here: An illustration in "Draw Stronger: Self Care for Cartoonists & Visual Artists" by Kriota Willberg published by Uncivilized Books.
Particularly useful are her illustrated exercise chapters for different parts of the body, from the hands and wrists, to exercises for the neck, chest and shoulders and finally, workout routines to resolve the mother-of-all-pain part of the body, the back. What's appealing about her instruction is that it comes in the form of her amusing illustrations with accompanying commentary from a jagged-lightning bolt wise-guy that reminds the reader of those sharp jabs we experience when our bodies have been under stress.
Think about how you sit, stand and hold your body during the workday. Shown here: An illustration from "Draw Stronger: Self Care for Cartoonists & Visual Artists" by Kriota Willberg published by Uncivilized Books.
What makes "Draw Stronger" different from other self-help books is Willberg's sense of humor that infuses every drawing, tip, fact, exercise and quip with originality and a lightness of being. While there will be pages you'll want to photocopy and tape up near your computer or sketch table for easy reference and reminders to stretch throughout the day, the book will also be a useful reference guide whenever a lightning bolt of raw pain shoots up your arm, neck, or back. —Donna Bulseco
The Serpent's Secret: Kiranmala and the Kingdom Beyond by Sayantani DasGupta
"The Serpent's Secret" is the first book in the Kiranmala and the Kingdom Beyond Series; Scholastic publishes the book on February 27, 2018.
“Stories are the way we human beings shape our worlds,” writes Sayantani DasGupta, MD MPH, in the article “Stories Matter: Narrative, Health and Social Justice.” In the piece, the author, educator and Intima contributor (Spring 2016 issue), elaborates on the ways that narrative is shaped by many factors, from the personal to the political. Narrative, she posits, can be life-changing: “In the face of illness or adversity, injustice or trauma, stories help bridge what theorist Arthur Frank has called ‘narrative wreckage’—the point at which one’s old life’s plot is no longer valid, and one needs a new plot with which to continue life’s journey.”
These words have a particular resonance right now in light of the #metoo movement, where long-silenced voices are being heard in narratives that support finding ways to balance sexual inequality. Curiously enough, the words are equally significant as a way to read “The Serpent’s Secret,” a remarkable and delightful new work of children’s fiction by Dr. DasGupta, just published by Scholastic as Book 1 of the new series Kiranmala and The Kingdom Beyond. How refreshing to find an electrifying social theorist like Dr. DasGupta who is also an entertaining prose stylist able to deliver an empowering novel for tweens. It’s a book that is multi-generational in the way the Harry Potter and Hunger Games series were—"The Serpent's Secret" also speaks to readers who finished middle school many red moons ago.
The book begins on the morning of New Jersey kid Kiranmala’s birthday, who in her own sassy voice introduces her story about a day when everything in her world radically changes:
The day my parents got swallowed by a rakkhosh and whisked away to another galactic dimension was a pretty crap-tastic day. The fact that it was actually my twelfth birthday made it all that much worse. Instead of cake or presents or a party, I spent the day kicking demon butt, traveling through time and space looking for my family, and basically saving New Jersey, our entire world, and everything beyond it. But I’m getting ahead of myself. I’ll tell you that part soon. First, let me back up a little.
As readers we are engaged by this smart, empowered narrator, who is alone, newly orphaned, yet tough—she already sounds like Ripley of Alien, one of the original female butt kickers in 1979 when the sci-fi thriller came out. We’re intrigued by words we do not know (what the heck is a ‘rakkhosh’?) and are drawn in by the promise of time travel and life-challenging adventures in other galaxies. In her own knowing way, young Kiranmala has given us the big-picture plot in the first paragraph, enticing us to come along with her to see what transpires.
Like many of the best books in children’s fiction, parents are dispensed with from the get go, here swallowed by a rakkosh—a “carnivorous, snot-trailing demon” who populates many of the Bengali folktales Dr. DasGupta was told as a child. In the first chapters, Kiranmala’s childhood home is also trashed by the demon with a black tongue who she calls “halitosis head.” That’s the overall dynamic and tone the author sets up: sword fighting amid the silliness, cleverness cancelling out the fearful chaos.
“The Serpent’s Secret” is aimed at young people who are at an age where childhood and adulthood begin to overlap, where the power of parents is displaced by the power of peers. Dr. DasGupta, a pediatrician and a mother, knows only too well the rough road of this developmental stage, when the plot of childhood branches off into new paths toward adulthood, and as a skillful writer, she’s able to bring to life the joys, confusion, real terror and pure happiness that emotional journey often takes in intriguing and amusing—not heavy-handed—ways. We are inside the young narrator’s head, seeing and judging events from her no-nonsense point of view. Her voice is compelling.
In Kiranmala’s quest to save her parents, she meets up with a cast of eccentric characters as amusing, complex and memorable as the flying monkeys, the Scarecrow, Tin Man, Good Witch and Bad Witch that Dorothy encounters in “The Wizard of Oz.” There’s Lal and Neel, two brother princes on winged horses who battle zombies and escort Kiranmala from Parsippany to the Kingdom Beyond Seven Oceans and Thirteen Rivers in search of her parents. There’s the magical pun-loving bird, Tuntani, whose corny jokes provide lighthearted moments and reflect the goofiness (“How do chickens get strong? Egg-ersize!”) tweens and teens love. There’s the intimidating green-eyed Sesha, the Serpent King, “guardian of the primordial ocean of divine nectar, keeper of time” and many others, each one an encounter for Kiranmala to confront and conquer to get to her goal.
Throughout the story, Kiranmala discovers dramatic truths about her origins as well as several revelations about life. There is the conflict between dark and light, a familiar theme in children’s and YA fiction from Grimms’ Fairy Tales to “A Series of Unfortunate Events” and “Twilight.” In “The Serpent’s Secret,” Kiranmala learns the difference between dark energy and dark matter, passes through tides of rubies in a peacock barge that reroutes her to the Demon Land (aka "The Blood-Thirsty State,") and battles a room of pythons to steal a jewel needed to read a shape-shifting map that will guide her to her parents. Those are just a few of the startling and original moments that keep the narrative taut and surprising throughout the novel’s 338 fast-paced pages.
Sayantani DasGupta, the daughter of Indian immigrants, wanted to share her love of books with her own kids but was saddened by the lack of heroes that looked like her family and neighbors. She decided to write her own stories, returning to the folktales she heard on childhood trips to India.
Originally trained in pediatrics and public health, Dr. DasGupta is also the author, co-author or co-editor of several books, including a book of Bengali folktales, The Demon Slayers and Other Stories (Interlink 1995), and the recent Principles and Practice of Narrative Medicine (Oxford 2016). She teaches in the Master's Program in Narrative Medicine, the Center for the Study of Ethnicity and Race, and the Institute of Comparative Literature and Society at Columbia University.
In the Author’s Note at the end of the book, Dr. DasGupta goes into detail about the Bengali folktales that inspired many of the characters in “The Serpent’s Secret.” It’s a short and welcome postscript that underscores one of the reasons the author decided to write children’s fiction. As the daughter of Indian immigrants, she wanted to share her love of books with her own kids but was surprised by the lack of diversity in the books available. She decided to write her own stories, returning to the folktales filled with bloodthirsty demons and enchanted animals that she heard on childhood trips to India. Cue applause for that decision: In the first book in the Kiranmala and The Kingdom Beyond series, Sayantani DasGupta has created lovable characters, a rollicking narrative and meaningful themes that have a broad appeal for many young (and not-so-young) readers, setting up a thirst for what's up next for the appealing young heroine.
New fans of Princess Kiranmala will undoubtedly be clamoring and drooling like rakkhoshs for Books 2 and 3.—Donna Bulseco
DONNA BULSECO, MA, MS, is a graduate of the Narrative Medicine program at Columbia University. After getting her BA at UCLA in creative writing and American poetry, the L.A. native studied English literature at Brown University for a Master's degree, then moved to New York City. She has been an editor and journalist for the past 25 years at publications such as the Wall Street Journal, Women's Wear Daily, W, Self, and InStyle, and has written articles for Health, More and The New York Times. She is Managing Editor of Intima: A Journal of Narrative Medicine.
Narrative in Social Work Practice: The Power and Possibility of Story. Edited by Ann Burack-Weiss, Lynn Sara Lawrence and Lynne Bamat-Mijangos. Foreword by Rita Charon
Narrative in Social Work Practice: The Power and Possibility of Story by Ann Burack-Weiss, Lynn Sara Lawrence and Lynne Bamat Mijangos.
She is 7. She is small…yet she fills the entire room…this child…has been raped... But she is still sturdy, she still smiles…this child of 7 is a giant, a superhero." —Social worker Kristen Slesar, writing about a young client
“My mother and I are on our way to the store. A gnome, dressed in curly-toed shoes, striped stockings, and pointy cap, waits on the sidewalk. He tries to pinch me. My mother cannot see the gnome. I try to hide, wrapping myself in her skirt…” —Social worker Lynne Mijangos, describing a dream she had
In a wonderful new book, Narrative in Social Work Practice: The Power and Possibility of Story (Columbia University Press, 2017), editors Ann Burack-Weiss, Lynn Sara Lawrence and Lynne Bamat Mijangos have gathered intimate, first-person accounts by social workers who have found creative ways to integrate narrative techniques into their work.
In some chapters, the social workers describe how they have developed and used narrative interventions with a wide range of individuals, families, and groups facing a variety of life challenges. In others, they share how they have turned their narrative skills inward and used them to deepen their self-understanding. In each instance, they use the tools of narrative training—close reading, attentive listening, reflective writing, and bearing witness to suffering —to help themselves and others confront and overcome external and internal barriers.
In one chapter, social worker Lauren Taylor uses psychotherapy and oral history to help clients find deeper meaning in their lives. Taylor describes her work with Marvlous, an African American woman who is depressed and in pain. As they talk, Taylor realizes that this sharp 95-year-old is a living historical archive. Working together, Taylor helps Marvlous, who at first thinks she has nothing much to say, recount and preserve the story she and her ancestors played in African American history. Taylor also describes her work with Joe, a 68-year-old man who is contemplating suicide. In the course of their work, Joe, who always dreamed of becoming an actor, writes and performs in a triumphant one-man show about his life.
Demonstrating the cross-border potential of narrative medicine, Benaifer Bhada talks about the narrative work she did with HIV-infected truck drivers in Kenya, and how participation in the group helped the men overcome feelings of shame and isolation, enabling them to seek appropriate treatment.
What do these stories have in common? In eloquent fashion, they all demonstrate how sharing our stories can help us break out of isolation and find our voices and our communities—at every stage of life —even as our bodies and cognitive abilities begin to deteriorate. Working with adults with dementia, Mary Hume uses poetry, co-constructed by the group, to express themselves, affirm their own value and continue to participate in their community:
“I like the smell of lilacs in May time;
For me that’s the best playtime
I like to bake crullers that are bestsellers
I like to throw confetti when they’re serving spaghetti…”
—Social worker Mary Hume, co-creating poetry with clients in dementia care
Some readers will want to dip in and out of these stories, which will give them a sense of the benefits of narrative practice in social work. But once one starts reading the stories, it's hard to skip around and instead read straight through. Each story is rich in its unique details and emotional truthfulness, making the book hard to put down.—Nelly Edmondson
NELLY EDMONDSON is a graduate of the Narrative Medicine Master's program at Columbia University. She also is an award-winning editor and writer with extensive experience covering medical topics for print and online outlets. In addition to serving as a staff editor at publications such as Weight Watchers Magazine and Ladies’ Home Journal, she has written articles for the The New York Times, Parents, MAMM Magazine, as well as medical-school websites and publications such as Einstein Magazine and The Chironian. http://www.nellyedmondson.com
Blessings and Sudden Intimacies by Greg Stidham, MD
Blessings and Sudden Intimacies: Musings of a Pediatric Intensivist, a 2016 memoir by Greg Stidham, MD, begins with a “sudden intimacy,” an encounter with a parent whose son has just died. The boy’s mother, after asking Dr. Stidham's permission, takes hold of and strokes his beard, an emblem of his sense of self.
It's that kind of startling detail, one remembered and deeply felt, that stands out in this medical memoir. In many ways, the author followed the normal trajectory of a clinician's path: After growing up in Cleveland, and excelling in school, Dr. Stidham attended Notre Dame and the Medical College of Ohio. In the 1970s, he was a fellow at Johns Hopkins, which had one of five Pediatric Critical Care training programs in the country. What starts to emerge in the narrative is Dr. Stidham's heightened sense of purpose: He went on to establish a pediatric palliative care program, the first in the region, at LeBonheur Children’s Medical Center hospital in Memphis, where he spent twenty-eight years of his career.
Encounters with critically ill and dying children and their parents present the poignant “sudden intimacies” of the book. The “blessings” of the title refer to the young patients, families and healthcare personnel who touch him. But they are also more broadly defined, as when Dr. Stidham writes about his early career, that “without that training and the opportunity to gain [pediatric critical care] expertise I would not have had the adventures that blessed the rest of my life.” The book is just as much about his personal as his professional life, and he says the two are “inextricably intertwined.” This is reflected in the structure of the book, which moves around in time and ranges wide geographically. We are taken on hiking trips to Colorado, camping trips in Arkansas, to Nicaragua where he helped set up a pediatric cardiac surgery program, and to Kingston, Ontario where he moved late in his career.
Dr. Stidham frankly relates his own marital and health problems, numerous enough to raise the question of how much his personal life suffered from the professional toll of long hours, nights on-call, and the emotional strain of dealing with dying children and their families, a potential conflict he doesn’t address directly. Instead he conveys his belief that life is extraordinary, and that he has done unusual and extraordinary things with his. He maintains an optimistic world view, a mindset that gives him the empathy and strength needed to sustain a long medical career.
Dr. Greg Stidham
Blessings and Sudden Intimacies makes you think about what you’ve done with your life, yet somehow Dr. Stidham leaves you feeling that whatever you’ve done, it’s enough. He writes with disarming charm: “Every life is rich in its own unique way, and deserves commemoration. Perhaps it is, in part, for those others that I write, for their rich, but otherwise uncommemorated lives.” He certainly conveys the richness of his own.—Priscilla Mainardi
PRISCILLA MAINARDI, a registered nurse, attended the University of Pennsylvania and earned her MFA degree in creative writing from Rutgers University. Her work appears in numerous journals, most recently The Examined Life Journal and Prick of the Spindle. She teaches English Composition at Rutgers in Newark, New Jersey. Her short story “Pretending Not to Know” appeared in the Spring 2014 Intima. She joined the editorial board of the Intima in 2015.
Anatomies: A Cultural History of the Human Body by Hugh Aldersey-Williams
In Hugh Aldersey-Williams' Anatomies: A Cultural History of the Human Body (W. W. Norton & Company, 2013), he poses a quasi-cultural, and intentionally un-anatomical, rationale for his constant middle of the night urination troubles: he’s getting old. The book does not offer a detailed glimpse into any specific disease, nor does it follow any individual navigating through a disease process. However, Anatomies allows the reader, regardless of training or background, to enjoy humorous anecdotes that explain how our cultural interpretations of our bodies, and what disease can do to them, have been shaped for centuries.
Aldersey-Williams makes known his disdain for doctors’ predilection to use overly obtuse medical definitions for body parts, like saying coxa for hip. He flexes his wit and knowledge on some of the most complex of organs while seamlessly jumping from micro to macro levels of anatomical and cultural understanding.
While tackling the larger questions that researchers continue to disagree upon, such as what constitutes an organ, the author also poses questions mystifying and ridiculous in equal parts, asking how we join many other species in the act of grooming yet we are unique in our development of hairstyles. He allows you to draw from the experiences he has accumulated as a field researcher as he reports drawing limbs and organs from the formaldehyde confines of an anatomy lab, to sketches of live subjects, and onto the assessment of dancers’, and our own, physical limits.
The book, much like a textbook sitting on the edge of a cadaver tank in the anatomy lab, is broken up by region and body part. When read through continuously, this layout can prove to be a little disjointed, but the separation of topics allows for a seamless re-entry into the text after prolonged periods of interruption. Anatomies will hardly provide direct insight into any one area, but opens avenues of thought into how we perceive ourselves, each other, and the most famous around us.— Salvatore Aiello
Salvatore Aiello M.S. is a medical student at Chicago Medical School at Rosalind Franklin University. After graduating from University of Michigan, he found that his minor in writing had the most lasting utility in both his academic and creative pursuits. Salvatore has several scientific articles published in peer-reviewed journals and has contributed to the blog, In-Training. Beyond his coursework and writing, he is described as the Benevolent-Overlord of the Medical Humanities Club where he works with his colleagues to promotes resiliency in physicians and all healthcare professionals.
Crossing Paths by Paolo Montalto, MD
"Organ transplantation always results in a crossing of paths: there is a life that ends and another that regains vital energy: hours of anguish and despair on the one hand, of apprehension and joy on the other. A cruel but inevitable crossing." These are the words of Dr. Paolo Montalto, a gastroenterologist who graduated from the University of Florence's Medical School after studying at the Hepatobiliary Unit of the Free Hospital in London.
Read moreWhat Patients Say, What Doctors Hear by Danielle Ofri, MD
In her book What Patients Say, What Doctors Hear, Danielle Ofri, MD, takes a deep dive into the ways doctors and patients miscommunicate or fail to communicate, and the problems that result.
Read moreThe Bright Hour: A Memoir about Living and Dying by Nina Riggs
“Nothing so concentrates experience and clarifies the central conditions of living as serious illness,” wrote Harvard psychiatrist Arthur Kleinman, and nowhere is that idea more evident than in a new memoir entitled, The Bright Hour: A Memoir of Living and Dying (Simon & Schuster, 2017) by Nina Riggs.
Read moreThe Timekeeper's Son by Sara Baker
An accident sets off the events of Sara Baker’s novel The Timekeeper’s Son (Deeds Publishing, 2016), landing one character in the hospital. Ms. Baker, whose story “The Sun in Cannes“ appeared in the Spring 2015 Intima, weaves together the voices of numerous characters whose lives become entwined by the accident.
Read moreBarriers and Belongings: Personal Narratives of Disabilities, Edited by Michelle Jarman, Leila Monaghan, and Alison Quaggin Harkin
An Iraq veteran fighting the “quiet conflict” of PTSD, a woman with memory loss who hides her disability as well as her misery, a man whose traumatic brain injury helps him make sense ofhis brother’s disability. These are a few of the many voices we learn from in Barriers and Belongings.
At first glance, the book is a disabilities studies textbook with an introduction and chapter openings that provide background on social and cultural approaches to disability, as well as useful definitions. But Barriers and Belongings is much more than a textbook: it’s an eye-opening collection of lives, told with honesty and moving candor. The narratives, which are organized into sections around themes such as communication, family and relationships, are engaging and short, allowing room for many different points of view. Most are written from the perspective of early adulthood, reflecting back on growing up, which gives them an appealing coming-of-age quality. The writers lead us up to the moment their conception of their disability changes in some way. The ways are as varied as the disabilities themselves, which range from acquired conditions such as PTSD and chronic pain, to congenital conditions such as cerebral palsy and Down Syndrome, to mental health and cognitive conditions. Because of these many viewpoints, one writer identifies the need for “people with diverse disabilities [to] recognize our common struggle” in order for the disability movement to reach its “full potential to change society.”
For the book is as much about the larger society as it is about the individual stories. Most of the writers see disability not as a problem to be solved but as an integral part of themselves, and want to reframe disability from a nonsocial and nonmedical perspective. As one writer puts it, “I wonder how the world would be if everyone realized that normal didn’t exist, and that trying to achieve normalcy was futile. What if disability didn’t always need a cure? What if everyone equated disability with difference, not deficiency?” Or as another writes: “Sometimes, abnormal is normal.”
PRISCILLA MAINARDI, a registered nurse, attended the University of Pennsylvania and earned her MFA degree in creative writing from Rutgers University. Her work appears in numerous journals, most recently The Examined Life Journal and Prick of the Spindle. She teaches English Composition at Rutgers in Newark, New Jersey. Her short story “Pretending Not to Know” appeared in the Spring 2014 Intima.
A Short Life by Jim Slotnick
No work better embraces narrative medicine than A Short Life, by Jim Slotnick. This prescient memoir, written in 1983 and published in 2014, narrates a young medical student’s terminal illness from pre-diagnosis to his final days. It is a song of life’s joys, deadly shortcuts in medical practice, the necessity of listening and paying attention, and the essential value of compassion.
Read moreThe Skin Above My Knee: A Memoir by Marcia Butler
When was the last time you really, truly listened to music? In the rush-rush of daily life, it's not always easy to sit, close your eyes and listen—deeply, emotionally, exclusively—to, say, a Mendelssohn Violin Concerto or "Naima" by John Coltrane or even Adele's achingly nostalgic love song, "Hello." Instead, we OM at a meditation class, zone out watching "The Crown" or "Black Mirror," or catch up on the latest Intima Field Notes (sorry, a bit of shameless self promotion) to de-stress from our chaotic lives. We often forget the restorative, soul-enhancing powers of music, the way we can lose ourselves and discover other worlds and emotional depths when we focus and attentively listen.
During her 25-year musical career, Marcia Butler performed as principal oboist and soloist on renowned New York and international stages, with many musicians and orchestras, includin pianist Andre Watts, composer and pianist Keith Jarrett, and soprano Dawn Upshaw.
Those feelings came rushing back to me as I read a new memoir by Marcia Butler, entitled The Skin Above My Knee. Butler, who published a story called "Cancer Diva," in the Spring 2015 Intima, was a classical oboist in New York City for 25 years. She has written an extraordinary and moving account of her life that goes beyond stories about her difficult childhood, icy and aloof mother, the many abusive men in her life and her struggles with addiction. Yes, we get all of those painful stories, fleshed out and delivered with Butler's sensitive, yet sardonic wit, but we also are party to her love and mastery of music.
Oh, glorious music! Every other chapter or so, Butler brings her musical world to life in palpable detail, pulsing with all of its highs, lows and endless hours of practice. We see her pride and excitement about being accepted to a music conservatory on full scholarship only to be told to play nothing but long tones "for months, possibly till the end of the semester." We watch, as she learns the "hell" of crafting the perfect reed from scratch only to ruin it and start all over again. We accompany her through the nerve-wracking challenges and transcendental joys of performing.
Consider this short excerpt where she describes accepting an invitation from composer Elliott Carter to be the first American to perform his oboe concerto:
Upon receiving the score, you can't play the piece or even do a cursory read-through. This is an understatement. You can't play a single bar at tempo or, in must cases, even three consecutive notes. You have to figure out how to cut into this massive behemoth. First learn the notes. Forget about making music at this point. Just learn the damn notes. Your practice sessions consist of setting the metronome at an unspeakably slow tempo and then playing one bar over and over until you can go one notch faster.....
...You remember the exact passage when the cogs lock together. It is not even the hardest section, technically, but what you begin to hear is music. There's music in there, and it is actually you making that music. Your stomach rolls over, a love swoon. The physical sensation is visceral and distinct. It is a very private knowing: a merging with something divine, precious, and rare. As a musician, you covet those moments. You live and play for them. It is a truly deep connection with the composer, as if you channel his inner life. A tender synergy is present, and you fear that to even speak about it will dissipate it immediately. Don't talk. Just be aware.
We're fortunate that Butler has decided to talk about her intense love affair with music and share her most intimate moments with us in this entertaining memoir. While the author touches upon her cancer diagnosis briefly, this isn't an illness narrative in any way, shape or form. Yet, she brings the idea of attentiveness and deep focus to light through her musical calling and finds a way to counteract trauma and pain in the expression of her art. By opening up the conversation about difficult moments and learning the discipline to recognize, express and find meaning in them, Butler also reminds us to listen, deeply, to the music of the world around us, as dissonant, lilting, strident or soothing it might be. Find the music that personally delivers meaning to you, be it a concerto or Ed Sheeran, "Shape of You." For her, it was always Norwegian opera singer Kirsten Flagstad performing Isolde's final aria, the "Liebestod," in Richard Wagner's magnificent Tristan and Isolde.—Donna Bulseco
If you would like to hear Marcia Butler in concert, the author provided a link to work where she performed. Click on the title of a piece for oboe and piano, entitled "Fancy Footwork" from the album, "On the Tip of My Tongue" by composer Eric Moe.
DONNA BULSECO, M.A., M.S., is a graduate of the Narrative Medicine program at Columbia University. After getting her B.A. at UCLA in creative writing and American poetry, the L.A. native studied English literature at Brown University for a Master's degree, then moved to New York City. She has been an editor and journalist for the past 25 years at publications such as the Wall Street Journal, Women's Wear Daily, W, Self, and InStyle, and has written articles for Health, More and the New York Times. She is Managing Editor of Intima: A Journal of Narrative Medicine, as well as a teaching associate at the School of Professional Studies at Columbia University.
Avalanche
Julia Leigh’s Avalanche, a story of the writer’s devastating desire and struggle to conceive a child, is a slender memoir. However, the pages are richly packed with the details of her private hell as she spirals through cycle after cycle of in vitro fertilization. The challenge of reading this book, though, is a worthwhile one. It is difficult to witness someone’s pain so intensely, but it is also an honor.
What Leigh exposes in her writing isn’t just the inner workings of our infertility zeitgeist, with all of its statistics, though the numbers are bleaker than the media would generally have us believe. She makes tangible the emotional and psychological turmoil that those numbers create in patients who will cling to any sign of hope. “In the last year, what percentage of women my age at the clinic had taken home a baby using their own eggs?” she asks. “[The doctor’s] answer: 2.8 percent for 44-year-olds, 6.6 percent for 43-year-olds…What to do? What to do? Where does this stop?”
The heart of this book beats with raw honesty. Leigh’s acknowledgement, for instance, of putting her career before her desire to start a family: “I also said—it pains me now—that I needed to safeguard ‘my hard-won creative life.’ Why was I so quick to add any sort of caveat? Why did I set the two ways of being—motherhood, writing—at odds?” And of course, the sad, perhaps humiliating reckoning with the biological reality of her age: “When I reported back to my sister she frowned and said… ‘I hate to say it but the main thing is the age of your eggs so any extra hope is marginal.’”
Avalanche is not a traditional a memoir filled with scenes and stories. Leigh isn’t concerned with writing workshop rhetoric here, which means less time spent on the areas where most writers are told to focus: developing characters and settings and showing not telling. She’s concerned with telling her truth. Her story is internal, psychological. Of course there are external factors—her marriage and divorce, her career—but ultimately, the story moves away from these forces and becomes an all-consuming individual quest. Less a book, more an extended essay of sorts, Avalanche isn’t divided into chapters. It reads like a wistful film, perhaps a result of Leigh’s experience in script-writing, and it feels intentionally written to be read and digested in one sitting.
The prevalence of fertility treatments in our world deems this book timely, but at its core, this is not a story of fad medical treatments or the contemporary female plight. “What I try to hold onto,” she writes at the end of her journey, “is a commitment to love widely and intensely. Tenderly. In ways I would not have previously expected…After the avalanche, the bare face of the mountain. Under the sun and the moon.” Leigh’s story, while deeply personal and specific, strikes a far more universal chord: the desire to love, and to be loved, unconditionally; to find beauty and satisfaction in unexpected places; and to gracefully accept our individual narratives, even if they don’t play out the way we hoped or imagined them. —Holly Schechter
HOLLY SCHECHTER teaches English and Writing at Stuyvesant High School in Manhattan. She graduated from McGill University with a degree in English Literature, and holds an MA from Teachers College, Columbia University. She is active at Mount Sinai Hospital in New York City, where she received excellent care as a patient, and in turn serves on the Friends of Mount Sinai Board and fundraises for spine research. Her piece "Genealogy" appeared in the Fall 2014 Intima.
The Heart
The Heart by French writer Maylis De Kerangal is exactly what it says it is: a dive into the multitude of lives that surround an organ donation. Unflinching and stark, this novel takes its readers into every crevice of the process of donation. We travel down each vein, into the inner depths of the many lives that will be changed by this experience.
De Kerangal’s novel is clear in its support of organ donation, but simultaneously opposes our culture’s narrative of this procedure. Rather than showing the miracle of a donation, the readers are first shown the torturous decision-making process. We see the protagonist, Simon, in his brutal accident. We are shown another character, Thomas Remige, as he confronts his role as a clinician—he must be compassionate, yet objective, and convince the family without any form of persuasion. Time bends as we follow Thomas’s storyline. We are shown the exacting time limitations for the immediate needs of others, but also the necessary, deliberate slowing of time for the grieving family. While the benefits and decisions about the organ’s next move are instantaneous, the family’s time almost stops completely. Thomas is acutely aware of the memories that will be associated with the decision and the months and years that will impact the family’s choices, and he has no intention of making the family feel coerced into donating Simon’s organs through a rushed conversation.
In this way, De Kerangal’s depiction of the family perspective is brutally honest and open in every form. However, the family’s journey to making this crucial decision about donation respectfully encompasses their grief and their need for a simultaneous closure and continuation of life. We see the way their family is sewn together through the wreckage of tragedy. Not only does De Kerangal describe the emotional effects of organ donation, but she also brings a level of clarity to the physical act of harvesting organs.
Maylis De Kerangal
That kind of examination allows the reader to shift from one space to another almost seamlessly, from the slow, muddled process of a family grieving and Thomas’s instantaneous and urgent messaging to the factual, the sterile, and the professional removal process. Combining these opposing attitudes and realities about organ donation immerses the reader into this messy and irreverent space. She has captured the essence of humanity and of the continuation of life within the death of this young man.
In the end, the author moves the reader poetically and seamlessly into a new space—one of sacred mourning that once again underscores the sacrifice. The author completely turns the ancient practice of heart-burial on its head, revealing a modernized perspective that simultaneously saves lives and gives the highest respect to the dead. Rather than keeping the heart separately interred in a place of worship, the heart is now "interred" in the most sacred space it can be given: another person's body. The heart’s consciousness and soul are symbolically kept safe and "live on" and in this way, De Kerangal takes a practice that may seem unnatural to some and puts it in line with revered practices, reserved only for kings and poets.
The Heart is a perspective-changing experience. De Kerangal transports us to the depths of grief, situating us elbow deep in the bloody body of a teenager, and then brings us up to the stars, to the heavens, and ultimately to the frailty and beauty of life and death--Katelyn Connor
Katelyn Connor is a National Sales Associate at Penguin Random House. She completed her degree in Narrative Medicine in May, 2016.
Catching Homelessness
When I read Josephine Ensign’s piece in this spring’s Intima and saw she had a novel coming out soon, I immediately wanted to read it. The book, Catching Homelessness: A Nurse's Story of Falling Through the Safety Net, published this year by She Writes Press, doesn’t disappoint. Ms. Ensign brings her masterful crisp prose and extensive experience as a family nurse practitioner, writer and teacher to the issue of homelessness, and offers an engaging, informative and moving memoir.
Catching Homelessness begins with Ms. Ensign’s childhood growing up at a camp near a Civil War battlefield, “a landscape of ghosts and half-buried violence, covered in violets, punctuated by deep, abandoned wells.” But the memoir’s main focus is Richmond, Virginia in the 1980’s, when Ms. Ensign was a newly minted nurse practitioner running a health clinic out of a homeless shelter. Her perspective of the homeless changes from her initial view of them as “exotic, impoverished, foreign-to-us people,” to real people with real problems: Lee, “dressed in several layers of hospital gowns, with the vulnerable air that clings to them,” who when dying of AIDS names Ms. Ensign as his next of kin; schizophrenic Louie, covered in head lice; pregnant Sallie with an IQ of 45. Ms. Ensign changes our view too, reaching us on an emotional level with these and other precisely drawn characters. We pick up a lot of knowledge along the way, not just about homelessness but also about the origin of the nurse practitioner role, the geography of Richmond and the lingering effects of its history. We learn to empathize with the people drawn to serving the homeless.
Josephine Ensign
As a young new nurse at the Richmond clinic, Ms. Ensign recalls, “I still wasn’t sure how far I’d go, what I’d risk catching in the name of compassion or health care duty.” Run-ins with Richmond’s male-dominated medical establishment, disillusionment with her Evangelical Christian upbringing, and a failing marriage lead to Ms. Ensign’s own homeless crisis, an experience which enables her to bring a unique perspective to the issue. By the end of the book, you feel you’ve read a good story and learned a lot too. And you’re sure to take the advice she offers in the book’s comprehensive appendix, and respond to the next homeless person you meet with a smile and a kind word. -- Priscilla Mainardi
PRISCILLA MAINARDI, a registered nurse, attended the University of Pennsylvania and earned her MFA degree in creative writing from Rutgers University. Her work appears in numerous journals, most recently Blue Moon Literary and Art Review and The Examined Life Journal. She teaches English Composition at Rutgers in Newark, New Jersey. Her short story “Pretending Not to Know” appeared in the Spring 2014 Intima.
Sleepwalker: The Mysterious Makings and Recovery of a Somnambulist
UPDATE, May, 2017. Kathleen Frazier, a Columbia University Narrative Medicine Masters student, has won the 2017 Independent Book Publisher Award for Best First Book – Nonfiction, for her memoir, “Sleepwalker: The Mysterious Makings and Recovery of a Somnambulist.” Book Award Listings (see #83): 2017 Independent Publisher Book Award. We'd like to congratulate Kathleen and urge you to read this enlightening book.
A picture of a very young Kathleen Frazier stayed with me throughout Sleepwalker, her fascinating memoir of the effect of her sleep disorder on her life. Ms. Frazier’s sleep problems begin in earnest at age twelve and range from insomnia to sleepwalking and night terrors, from which she awakens screaming in fright and occasionally in perilous situations. She blames herself for these problems and hides them, afraid that if anyone learns about them they will lock her up. Though living in a constant state of exhaustion and fear, she attends college, moves to Manhattan, marries and divorces, and pursues an acting career while holding down numerous waitressing jobs. Her sleep problems continue through her twenties as she self-medicates with alcohol and, unable to sustain intimacy, becomes promiscuous.
Ms. Frazier is the youngest of five children whose parents are not without their own problems: her father is a recovering alcoholic and insomniac and her mother experiences night terrors. The stories they tell about her grandparents also hint at sleep problems, and the book raises the question of whether sleep disorders have a genetic component.
Sleep science is in its infancy, and Sleepwalker illustrates the lack of understanding of sleep disorders among medical professionals as well as the public. Ms. Frazier eventually finds help from a doctor who specializes in sleep disorders. She starts to sleep better, first aided by medication, then through a combination of diet, therapy, lifestyle modification, and the support of friends and her newly established family. She comes to recognize the role of her own denial and of traumatizing events of her childhood in her sleep disorder. She begins to write Sleepwalker, and telling her story becomes an essential and integral part of her recovery.--Priscilla Mainardi
PRISCILLA MAINARDI, a registered nurse, attended the University of Pennsylvania and earned her MFA degree in creative writing from Rutgers University. Her work appears in numerous journals, most recently Blue Moon Literary and Art Review and The Examined Life Journal. She teaches English Composition at Rutgers in Newark, New Jersey. Her short story “Pretending Not to Know” appeared in the Spring 2014 Intima.
When Breath Becomes Air
It is often startling and unsettling to read the work of a writer who has passed. In some ways, this is the norm—it’s rare that students in school read books by writers still alive. The distinction, however, is this: those writers—Shakespeare, Joyce, Woolf, even Salinger, who only passed a few years ago—aren’t writing about their descent into death as they lived it. Paul Kalinthi’s When Breath Becomes Air details the last year of his life as he, a neurosurgeon, fights metastatic lung cancer. It sounds depressing in summary, though the book lacks any trace of self-pity or of anger. It is written with intelligence and with honesty, a product of reflection and insight. We can trust him, the reader knows, to present his story to us the same way we could have trusted him to operate on our brains. His humanity is tangible.
The most striking observation about the book is its voice. Despite his death last year, Kalinthi’s voice is rich and alive on the page, and he speaks not to doctors or to cancer patients but to anyone who is interested in the question of what it means to live and to die with humanity. Kalinthi spent his life devoted to this question, always torn between a career in the humanities and one in medicine. He ultimately pursued both, first a Master’s degree in literature and then medical school for neurosurgery. “The call to protect life—and not merely life but another’s identity; it is perhaps not too much to say another’s soul—was obvious in its sacredness,” he explains about neurosurgery. “Before operating on a patient’s brain, I realized, I must first understand his mind: his identity, his values, what makes his life worth living, and what devastation makes it reasonable to let that life end. The cost of my dedication to succeed was high, and the ineluctable failures brought me nearly unbearable guilt. Those burdens are what make medicine holy and wholly impossible: in taking up another’s cross, one must sometimes get crushed by the weight.”
In the book’s introduction, Abraham Verghese makes note of Kalinthi’s “prophet’s beard,” an idea his wife Lucy later clarifies as an “I didn’t have time to shave” beard—but to readers of his book, it’s clear that Kalinthi was, in fact, a prophet in many ways. His observation that “life isn’t about avoiding suffering,” which he acknowledges in his and Lucy’s decision to have a child despite his prognosis, demonstrates the ways he understands the world beyond his own life. Experiencing illness as a doctor—and a sensitive, empathetic one—adds a moral gravity to his words.
The Kalinthi family: Paul, Lucy, and baby Cady
Paul Kalinthi passed away surrounded by his family when his daughter Cady was eight months old. “When you come to one of the many moments in life where you must give an account of yourself,” he tells his daughter in the final paragraph, “provide a ledger of what you have been, and done, and meant to the world, do not, I pray, discount that you filled a dying man’s days with a sated joy, a joy unknown to me in all my prior years, a joy that does not hunger for more and more but rests, satisfied. In this time, right now, that is an enormous thing.” His life was cut too short, though his extraordinary accomplishments in his thirty-seven years might make you reevaluate how you’ve spent your time, what you’ve taken for granted, and how to leave an imprint as large as his. —Holly Schechter
HOLLY SCHECHTER teaches English and Writing at Stuyvesant High School in Manhattan. She graduated from McGill University with a degree in English Literature, and holds an MA from Teachers College, Columbia University. She is active at Mount Sinai Hospital in New York City, where she received excellent care as a patient, and in turn serves on the Friends of Mount Sinai Board and fundraises for spine research. Her piece "Genealogy" appeared in the Fall 2014 Intima.
Interview with Kathleen Frazier, Author of Sleepwalker
Kathleen Frazier
I talked to Kathleen Frazier, author of Sleepwalker: The Mysterious Makings and Recovery of a Somnambulist, recently on her lunch hour from her administrative job at Columbia University, where she has been accepted into the Masters of Science Program in Narrative Medicine.
Congratulations on the publication of Sleepwalker and its continuing success. I read that your agent signed you after reading your piece about sleep disorders in Psychology Today. Very nice story.
Thank you. I originally wrote that piece for Modern Love [the New York Times column] but they turned it down. It really belonged in Psychology Today. My proposal was based on that essay. Years before, in the late 1990s, I’d begun writing down my memories from sense memory exercises at The Actors Studio. But I felt too much shame to share the sleepwalking publicly so I turned the memories into young adult fiction. The teen protagonist was a sleepwalker but the material was too dark for the young adult market, though it wouldn't be now. The turning point for me, in regard to my decision to write the memoir, was the tragic death of Tobias Wong, who hung himself in 2010, most probably while sleepwalking. Soon after, I took an essay writing class and my teacher pointed out that my memoir was really a love story. (I'd met my husband just days after a severe accident I had in the middle of a sleepwalking/sleep terror episode.) My agent helped me focus the story on my sleep disorders as they related to my relationships and my fear of intimacy. I was especially terrified of being seen as a freak, even as a child.
How common are sleep disorders?
More common than people realize. Dr. Mahowald, who wrote the foreword to my book, was a Principal Investigator in the first national study ever conducted on nocturnal wandering in the United States, in 2012. The research showed that almost thirty percent of Americans have experienced at least one episode. Sleep disorders, especially insomnia and sleep terrors, can often be related to trauma. You see them in PTSD and chronic trauma, for example in victims of child abuse, domestic violence, rape, and other crimes. And, very much in the news, we see debilitating sleep issues associated with our soldiers returning from war. Sleep is inextricably linked to our mental health.
The book raises the question of whether there’s also a genetic component to sleep disorders. You write that your father was an alcoholic and your mother also suffered from night terrors.
Yes, it does raise the question of genetics. My father got sober, which was unusual for that time. Later he relapsed on sleeping pills, though at the time no one recognized this as a relapse. He suffered terribly from insomnia, from the trauma of WWII. Both my parents survived alcoholic homes and both had unpredictable fits of rage.
Acting seems like an odd choice for someone who wanted to be invisible as a child, as you write.
I used to sing as a child, at a neighbor’s house. Some part of my spirit wanted to express itself that way. Doing work on stage made me feel so happy and connected to that part of my spirit. I was “bit,” as they say, the first time I was on the stage as a senior in high school.
You were afraid to share your sleep problems with anyone, afraid of being diagnosed as mentally ill. Did you really think you were mentally ill, since you functioned pretty well during the day?
I did the best I could, but I was functionally affected. There was a lot of denial. I had read about my sleep disorders in Psychology Today when I was sixteen and the message was to tolerate them. By the time I finished theater school in New York, I was constantly exhausted, unable to go for auditions, even though they were important to me. My insomnia worsened for fear of having episodes. Sleep deprivation is a form of torture. I began self-medicating with alcohol and became promiscuous in a city that was burgeoning with Aids. This was self-abusive and a hidden cry for help.
And now? Are you fully recovered?
I still have an occasional night terror when I’m under stress or get triggered, for example by violence in a movie. I haven't left my bed in over 20 years. Still, I remember how unsettling it was to be told that I did something while sound asleep without any recollection. Just as frightening was to wake up during a night terror, like waking up in the middle of a horror movie.
What are you working on now?
An historical novel called Selkie Girl inspired by my Irish grandmother, about a girl at the turn of the last century whose unwed mother commits suicide on the night she’s born. She’s ostracized by her village and forlorn that her mother abandoned her. A kindly grandma figure consoles her, and tells her that her mother was a selkie, a seal which, according to Celtic legend, sheds its skin to become human on land. I won't say anymore—don’t want to spoil it—but the book incorporates a lot of the intergenerational trauma that I explored in Sleepwalker.
What about acting?
I participate some at the Actors Studio, but lately my creative attention has been towards my writing. I've had the challenge recently of using voice-activated software because of wrist injuries. I also narrated my book for Audible and am creating a podcast about sleep which will focus on people's narratives.
Has Sleepwalker helped a lot of people?
My dentist recommended it to a patient. Another dentist I know had a patient whose teeth were ruined because she would get up during the night and chew on ice chips. Some people make and eat whole meals while asleep. Readers seem to identify with my story, with the connection between trauma and sleep problems, and they pass it along to others who might benefit.
Shortly after this interview a family reached out to Ms. Frazier to tell her how much her book comforted them after the tragic death of a family member while sleepwalking. Ms. Frazier wrote in an email: “The fact that my book came out only two months before this death is for me a sign that it has the potential to educate, comfort, and I hope maybe prevent injury and even death by sleepwalking. I am very, very grateful that sharing my story could bring this family any bit of comfort.”
The Editors at The Intima are in turn grateful to Ms. Frazier for sharing her thoughts and ideas with our readers.—Priscilla Mainardi